Sunday, 3 March 2013

The path to hell is paved with good intentions OR No, I don't want your help, thank you very much.



I am going through a rough patch. The pain is intense and I am constantly exhausted (– what did you expect, which new mother ever wasn't exhausted?). This doesn't exactly improve my mood. This fact has, however, its good sides as it makes me finally admit a few things.
Help is a wonderful thing – under certain conditions that is. For one it has to be you who gives the help (may you never be in the position of the receiver) and second, it has to be given unconditionally and wholeheartedly or else it rankles.
Now, my experience of help somehow doesn't fit the above rules and therefore it is driving me mad.
When I first got ill I was told to be careful not to become a burden for society. I had not even asked for any help then, I had just stated my condition – including my intention to continue working etc. What this taught me was an unnecessary lesson (I was thoroughly schooled in coping by life): NEVER show any weakness, NEVER EVER ask for help.
Well, so far so good, I didn't ask for help until a well-meaning member of humanity threatened me with sending in the social worker if I wouldn't call her myself. This left me with not much of a choice and so the social services were involved: Me telling them that, yes, I am not feeling well, yes, there is a lot I can't do anymore, but no, there isn't really anything they could do for me. They insisted to help (we got a reduction on child care and, in theory, a wee bit of support for paying a cleaner. As she was never paid by the council we ended up paying everything out of our own pocket) – only to tell me later that I didn't really deserve their help but why did I always think I had to do everything by myself and why couldn't I get others to do more and why didn't I employ someone for some more cleaning…
Then came the question: why do you work, you know you could get a disability pension – there are many who get it and deserve it less.
Then I was told that I couldn't be feeling too bad as I was working – only, on second thought I was looking rather awful and if I really thought it ok to show up at work in such a state?
Finally I was told that I couldn't expect a single person to be always my helper (mind you she insisted on 'helping') as I obviously didn't really need her help anyway – and besides there were at least three more ladies who would be delighted to share the burden with the first one – only I never asked and therefore deprived them of the opportunity of helping me.
Now, what do these episodes have in common? For one they seem, at least to my addled brain, absolutely and entirely contradictory or senseless and second, they are a perfect example for 'damned if you do and damned if you don't' – if you pardon my French.
The short and the long of it is that if you don't ask for help you are irresponsible and silly and have to be forced to do the right thing. Then, having received the help you didn't want in the first place, you have to apologize for it because you don't 'really deserve' it. On the other hand, if you do ask for help you will have to apologize afterwards again for the inconvenience you've caused or you have to give long speeches to justify your need...
I hate being at the receiving end. I prefer to bungle along on myself. So I can't always cook, so my children do watch Fireman Sam a little too often because I can't always do much by afternoon, so I do limp and walk very slowly when fetching my middle one from kindergarten – so what. Nobody ever said that life has to be easy – I never expected it to be. I cope and I do not appreciate well-meaning people making life even more complicated than it is (nasty, isn't it – I'm such an ingrate!). 
For those who want to know why I work: I work because I love my job, because it is one of the things I am physically able to do, because it gives me satisfaction, because we need the money and because it keeps me sane.
Before you ask, yes it is very difficult to get up and even more difficult to put up a cheerful face when in pain and at work and yes, I regularly cry from pain on my way back home but it gives my life the semblance of normality and it's worth while – most of the time that is.

Monday, 25 February 2013

Pregnancy

The last few months have taught me a lot. For one I know with absolute certainty that I will go straight to paradise after 120. Hell I had here. Further I have learned that complaining and being ungrateful is by far not the same...
For the last nine months I have been the most grateful and delighted woman on earth. I was expecting a baby for eight of them. I don't take the gift of parenthood lightly, it's amazing. Basically it was one of the greatest things that ever happened to me. However, having fibromyalgia while being a working mother of two in addition to pregnancy turned out to be hell on earth. Every day ended with me thinking that it couldn't possibly get worse, only to discover the next day that I had not yet known the meaning of the word 'bad day' or 'pain'. It still amazes me how much pain a person can take.
Anyhow, it was a great lesson in self discipline, to get up in the morning, get the children ready, go to school, smile (boy, that's one of the hardest things: to smile when you are in pain) and dealing with all those well-meaning people who tell you what you can or can't do, how you aught to feel and what you do or don't deserve (thinking about it, maybe that's harder than smiling).
Now baby is here everything is bliss :) well nearly so. I am grateful, happy and absolutely in love with his fluffy babyship. Nevertheless, the fibro has not disappeared. I am back to normal - meaning that there are good days and then there are some others. I am a little disappointed; well, I shouldn't be as it was to be expected. Though miracles do happen they cannot be taken for granted.
Sometimes it's hard to hold the baby, sometimes I am afraid to drop him because of the pain and the lack of control over my hands. It's a new experience and not a pleasant one but I will learn, learn as well not to let this mar my joy. And I guess I will have to learn not to think less of myself as a mother.